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The Story Within : Personal Essays on Genetics and Identity by Amy Boesky (2013, Trade Paperback)

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Story Within : Personal Essays on Genetics and Identity, Paperback by Boesky, Amy (EDT), ISBN 1421410966, ISBN-13 9781421410968, Brand New, Free shipping in the US Contributors of sixteen essays disclose their experiences with genetic disabilities such as Huntington's disease, Alzheimer's disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs Disease, hypertrophic cardiomyopathy, fragile-X syndrome, and Fanconi's anemia. Rather than focus on the condition, the contributors concentrate on what happened to them, if they wanted to know what they had and the prognosis, and what they thought about transmitting the disease to the next generation. Editor is Boesky (English, Boston College). Annotation ©2014 Book News, Inc., Portland, OR ()

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The contributors to The Story Within share powerful experiences of living with genetic disorders. Their stories illustrate the complexities involved in making decisions about genetic diseases: whether to be tested, who to tell, whether to have children, and whether and how to treat children medically, if treatment is available. More broadly, they consider how genetic information shapes the ways we see ourselves, the world, and our actions within it. People affected by genetic disease respond to such choices in varied and personal ways. These writers reflect that breadth of response, yet they share the desire to challenge a restricted sense of what "health" is or whose life has value. They write hoping to expand conversations about genetics and identity--to deepen debate and generate questions. They or their families are affected by Huntington's disease, Alzheimer's disease, cancer, genetic deafness or blindness, schizophrenia, cystic fibrosis, Tay-Sachs, hypertrophic cardiomyopathy, fragile X, or Fanconi anemia. All of their stories remind us that genetic health is complicated, dynamic, and above all, deeply personal. Contributors Misha Angrist, Amy Boesky, Kelly Cupo, Michael Downing, Clare Dunsford, Mara Faulkner, Christine Kehl O'Hagan, Charlie Pierce, Kate Preskenis, Emily Rapp, Jennifer Rosner, Joanna Rudnick, Anabel Stenzel (deceased), Isabel Stenzel Byrnes, Laurie Strongin, Patrick Tracey, Alice Wexler

Product Identifiers

Publisher
Johns Hopkins University Press
ISBN-10
1421410966
ISBN-13
9781421410968
eBay Product ID (ePID)
166462331

Product Key Features

Author
Amy Boesky
Publication Name
Story Within : Personal Essays on Genetics and Identity
Format
Trade Paperback
Language
English
Publication Year
2013
Type
Textbook
Number of Pages
280 Pages

Dimensions

Item Length
9in
Item Height
0.7in
Item Width
6in
Item Weight
13.6 Oz

Additional Product Features

Lc Classification Number
Rb155.S985 2013
Grade from
College Freshman
Grade to
College Graduate Student
Reviews
A compelling collection of essays that address the experiences of many who have genetically based illnesses... These pieces can comfort those in similar situations; inform friends, relatives, and caregivers; enlighten health providers; and help us all better understand how others experience the world in which we live. VERDICT Recommended for those who are touched by genetic disorders or are interested in health in the modern world., The Story Within est un collectif russi. Il s'efforce avec bonheur, rigueur et respect de concilier quelque chose comme l'orignal (singulier) et l'originaire (universel), le littral (de l'ADN) et le littraire (des textes runis)., For those who have traveled a similar path and who have faced genetic illnesses, these stories can be a source of comfort. These stories can also help inform and educate and generate much needed dialogue about health and body norms. The narratives in The Story Within are a reminder that every life has value., ""When medical students really feel that they understand genetics... let them read The Story Within and be brought down to earth with a bang. I know I was."", When medical students really feel that they understand genetics... let them read The Story Within and be brought down to earth with a bang. I know I was., If there were an All-Star Team for memoirists struggling with genetic misfortune... The Story Within would surely be it., The Story Within is a true success of a collection. With joy, rigor, and respect, it strvies to reconcile something like the original (one-of-a-kind) and the originator (universal), the literal (DNA) and the literary (collected essays). Original review below, The Story Within est un collectif réussi. Il s'efforce avec bonheur, rigueur et respect de concilier quelque chose comme l'orignal (singulier) et l'originaire (universel), le littéral (de l'ADN) et le littéraire (des textes réunis).
Table of Content
Acknowledgments Introduction Part I: Finding Out: Genetics and Ideas of Self Chapter 1. Undiagnosed Chapter 2. Driving North Chapter 3. Collateral Damage Chapter 4. In Samarra Chapter 5. The Unnumbered Part II: Intervening: Living with Genetic Difference Chapter 6. Of Helices, HIPAA, Hairballs... and Humans Chapter 7. The Power of Two: Two Sisters, Two Genes, and Two New Chances at Life Chapter 8. Permission to Look: Documenting the BRCA Mutation Chapter 9. "Why Would You Be Wantin' to Know?" Not Talking about Schizophrenia in Ireland Chapter 10. Help Wanted Chapter 11. Community and Other Ordinary Miracles Part III: Passing Down: Genetics and Family Chapter 12. String Theory, or How One Family Listens Through Deafness Chapter 13. What If Chapter 14. The Long Arm Chapter 15. Lettuce and Shoes Chapter 16. Dear Dr. Frankenstein: Creation Up Close Epilogue Notes List of Contributors Index
Copyright Date
2013
Target Audience
College Audience
Topic
Public Health, Genetics, History, Health Policy
Lccn
2013-001931
Dewey Decimal
616/.042
Dewey Edition
23
Genre
Science, Medical

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